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"The spirit of liberty is the spirit which is not too sure that it is right."Â -- U.S. Circuit Judge Learned Hand (1872-1961)
DONALD MAURICE KREIS
CF Heterozygote, Self-Appointed Architecture Critic, Cooperator, Ratepayer Advocate
[N1303K is a mutation on Chromosome 7 associated with cystic fibrosis. In case you were wondering. Find me on most social media as @DMoKreis. Interested in the work I do at my day job? Check out oca.nh.gov.
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Good News: No Room at the Inn in 2020 for Rose
Among other things, 2020 was a great year to stay out of the hospital. And that's exactly what my daughter Rose managed to do this year...
D. Maurice Kreis
Nov 29, 20206 min read
101 views
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Cystic Fibrosis, Sickle Cell Disease, and White Supremacy
It's time for the Cystic Fibrosis Community in the United States to confront our moral responsibility to stand in solidarity with our...
D. Maurice Kreis
Nov 22, 20207 min read
55 views
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Awful news about one of the planet's greatest engineering and design marvels
Details here. I've been to Arecibo. The trip to get there, through the rain forest, is remarkable enough. But then you come to the...
D. Maurice Kreis
Nov 19, 20201 min read
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"Real Patriots Serve and Sacrifice"
[The dispatch below came pouring out of me this morning, for sharing with readers of my Facebook page. On reflection I decided it would...
D. Maurice Kreis
Nov 18, 20204 min read
11 views
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Write to info@vertexsaveus.org
The planetary grassroots organization Vertex Save Us is reaching out to the CF community for support. We Americans are in a very...
D. Maurice Kreis
Nov 16, 20201 min read
12 views
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Big Pharma's Billion Dollar Bribe -- but don't worry, it's Canada
By which I mean, of course, that it's only $764 million in U.S. dollars (according to the November 16 exchange rate). But if you are...
D. Maurice Kreis
Nov 16, 20205 min read
27 views
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How has COVID-19 affected Cystic Fibrosis patients in the U.S.?
Above is the data from the CF Foundation's national patient registry, as of 11/12/2020. Bottom line = three deaths, all of them...
D. Maurice Kreis
Nov 13, 20201 min read
8 views
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Our Family's $300,000 Question and the Coming Answer from the U.S. Supreme Court
What do the American Cancer Society, the American Diabetes Association, the American Heart Association (and its division, the American...
D. Maurice Kreis
Nov 11, 20204 min read
26 views
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Post-Pandemic Road Trip Fantasy: Rochester, N.Y.
When the Old Man of the Mountain toppled to earth on May 3, 2003, I instantly had an idea for a replacement New Hampshire Icon. Rather...
D. Maurice Kreis
Nov 8, 20204 min read
21 views
0 comments
CF Venture Philanthropy and its Mysteries, Revealed (Somewhat)
Kudos to the top officials of the Cystic Fibrosis Foundation -- CEO Mike Boyle and COO Marc Ginsky -- for briefing key CFF volunteers...
D. Maurice Kreis
Nov 5, 20205 min read
33 views
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Thoughts for Today, 11/4/2020
Hello Planet Earth: Seventy-two years ago, a pathologist working at Columbia-Presbyterian Medical Center in New York announced via a...
D. Maurice Kreis
Nov 4, 20204 min read
6 views
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The CFF Cashes Another Big Check
To know me is to know that my favorite charity is the Cystic Fibrosis Foundation. Just as the March of Dimes cured polio, so too is the...
D. Maurice Kreis
Nov 2, 20205 min read
90 views
0 comments
The Three Ugliest Buildings in Northern New England
Kate Wagner is my new icon and role model. Yeah, from what I can tell she's about half my age. She has training and insight I can never...
D. Maurice Kreis
Nov 1, 20206 min read
208 views
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Architecture: Alnoba is Triple E (Energy Efficiency + Excellence)
Interesting contemporary architecture can be mighty hard to find in New Hampshire. Yes, the Granite State is home to one of the most...
D. Maurice Kreis
Oct 26, 20204 min read
40 views
1 comment
Jack Tuholske, Superstar
One of my most salutary bits of career-related happenstance occurred a decade ago when I joined a triumverate consisting of me and two...
D. Maurice Kreis
Oct 25, 20204 min read
89 views
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D. Maurice Kreis
Oct 22, 20200 min read
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Data and its Discontents
One of the biggest reasons why the struggle to overcome cystic fibrosis is "the greatest story in medicine" is something the CF...
D. Maurice Kreis
Oct 22, 20202 min read
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Utility Regulation Gone Awry: A Crash Course
It always drives me crazy when journalists covering topics related to energy or public utilities proclaim in their first sentence or two...
D. Maurice Kreis
Oct 17, 20202 min read
9 views
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Mucus, Mortality and Music from Connecticut
Diet Cherry Coke is one of my two guilty pleasures. The other one I acquired in 2002, just a few days after my daughter was diagnosed...
D. Maurice Kreis
Oct 13, 20209 min read
31 views
0 comments
Why I'm sick of Policy Governance
This blog post publicly proclaims the end of my 17-year intimate relationship with John Carver. Okay, okay. I've never actually met John...
D. Maurice Kreis
Oct 7, 20207 min read
101 views
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